The star actor of the popular show “Stranger things” on Netflix has alone raised awareness about a rare genetic condition called cleidocranial dysplasia (CCD), also known as cleidocranial dysostosis. The 17 years old actor, Gaten Matarazzo, is one of the stars of the show playing the role of Dustin Henderson. He was born with CCD.
CCD is a very rare condition that mainly affects bone and teeth development. In this condition, the collar bones are either absent or poorly developed. Their shoulders are sloppy and narrow. Therefore, the individual can bring his shoulders closer to each other in front of the body.
Among the dental abnormalities, CCD causes a delay in primary or baby teeth loss and appearance of secondary or adult teeth as well as misalignment of jaws and unusually-shaped teeth.
The other symptoms of CCD abnormal curvature of the spine, broad thumbs and short fingers, short forearms, a wide and short skull, prominent forehead and others. The symptoms vary among individuals, even within the same family. CCD develops due to mutations in the RUNX gene. This gene codes for proteins involved in the development of bones, cartilage, and teeth.
The writers added the condition in the script. The character of Matarazzo referred to the condition in the very first episode. Later, he got dentures. The actor has already discussed it in several tv talk shows.
Dustin, the character of Matarazzo, fights against the bullies by making the statement “I have told you a million times. My teeth are coming in. It is called cleidocranial dysplasia” in one of the episodes of the show.
Dustin shared the photos of his treatment including surgeries to spread awareness regarding CCD and decreasing the sense of shame from people suffering from it.
Researchers from Oklahoma State University, Tulsa stated that after this exposure, the Google searches regarding CCD have sharply increased by over 94%.
After the premiere of the 3rd season of Stranger Things in July 2019, an informative page reported about a 125-fold increase in views.
For CCD, there is no complete cure. The supportive treatments include the management of individual symptoms including the provision of calcium and vitamin D for promoting bone development ad strength and dental care, as these individuals are usually osteopenic.
According to the National Organization for Rare Disorders, CCD is a very rare genetic condition with a birth prevalence of 1 in a million. In medical literature, only 1000 cases of this condition are reported.
The study published in the journal of JAMA Otolaryngology-Head and Neck analyzed data from Google searches and trends as well as CCD-related organizations after each season of Stranger Things.
Researchers reported that after each season, they found a tremendous spike in searches related to CCD above the expected trend. They showed that there was approximately 11.2% and 12.9% increase in Google searches for CCD after season 1 and 2 respectively. However, the highest spike was observed after the 3rd season, with an increase of 94.4% in related Google searches.
The authors of the study wrote that raising awareness has contributed to increasing funding for researches, early diagnosis, increasing treatment choices, reducing the sense of isolation among affected individuals and improving the quality of life for them.
Dustin recently shared the photos of his treatment including surgeries to spread awareness regarding CCD and decreasing the sense of shame from people suffering from it.
Nunica town of Michigan gets its first legal Weed Retailer this week
In the United States, the battle for legal cannabis remains an ongoing slow burn. In recent highlights, the state of Vermont finally gained a bill that decriminalizes recreational cannabis. Aside from that, encouraging news on this front seems few and far in between. The most notable recent exception goes to the town of Nunica in Ottawa County, Michigan.
In Nunica, a small town in Ottawa County (which, unlike the other Ottawa, never had legal recreational cannabis) a peculiar shop opened up. Settled in an area called Crockery Township, the store goes by the name of the ‘Exit 9 Provisionary’. While the name sounds spartan, this little shop holds the title of the first cannabis retailer in the whole county. This quirky designation only took effect just this Monday.
The dispensary, owned by a company called ‘Agri-Med‘, becomes a watershed monument
While the store itself comes off as simple and unassuming, visitors must know that they come across history. Michigan, subject to decades of repressive, Puritanical laws, repressive as they were, saw extreme measures like Prohibition take hold across the country. This meant that attitudes towards alcohol and cannabis suffered. Consequently, Michigan only gained legalization of recreational weed in 2018.
This Agri-Med owned store simply exists apart from the era it’s in. While the entire nation grapples with primitive laws that make cannabis federally illegal, Ottawa County thrives. The town of Nunica may have only a small population, with limited demand for cannabis, but the freedom to sell must feel exhilarating. The entire state has yet to properly embrace their cannabis-legal legislation. And furthermore, the cannabis industry as a whole is still in its nascent stages.
Setting up the store, and dealing with the government permits, took great effort
The CEO of Agri-Med, Greg Maki, recently expressed his enthusiasm for expanding operations in Nunica. He claims he felt a personal connection to Ottawa County, and recalls its staunch Prohibitionist stance until recently. In addition, he himself went to great lengths to install Exit 9 Provisionary.
The process took a great deal of negotiations, according to Maki. The local townspeople were persuaded and their concerns assuaged. Also, the local politicians and people of influence needed individual persuasion too. To achieve this, Maki says that he and his team collaborated with the local Health Department. Together, the two entities promoted cannabis awareness and education using fliers and posters across greater Ottawa County. Even still, he cautions that some work remains. This includes the official inauguration of the store and precautionary measures taken to combat the spread of the COVID-19 pandemic.
Despite taking place in a small town, the pro-cannabis movement in Nunica accomplished something remarkable
Nunica gained overnight something a major metropolis like New York City still lacks, even after decades of campaigning. The freedom to sell, distribute, produce and consume legal cannabis remains an underappreciated boon. Many states vie for the title of the “most progressive”, but given the odds against them, it seems Michigan may have trumped California. Of course, the next step is to encourage and normalize recreational cannabis consumption. This will serve the movement by ensuring more and more people take part in the growing cannabis industry.
Speaking of the cannabis industry, it astounds economists just how well the ongoing pandemic impacted it. From increasing demand for weed to funding scholarships for marginalized communities, the benefits of the cannabis trade seem countless. Stay tuned for the latest on this!
New Vermont Bill Decriminalizes Recreational Cannabis And Pardons Related Convictions
Cannabis, over the past two decades, went from an almost universally banned substance to one with major acceptance. Across greater Europe, from Scandinavia to the Netherlands, the drug goes legal and regulated. In other developed nations, like Australia and Canada, the legalization of cannabis happened long ago. And now, the last, and toughest, hold out remains the United States of America. Few states permit recreational marijuana, which is why the state of Vermont finally has its turning point.
Just this week, official Senate meetings to discuss proposals yielded a victory for cannabis supporters. The new bill, S.54, sought decriminalization of recreational cannabis and amnesty for any convicted on cannabis related past charges. In addition, the bill allows the regulation, distribution and sale of cannabis across the entire state. All it needs is an official signature.
A vote to pass the bill this week resulted in a total bicameral compromise
The two-house system in state level Senate politics decides many of the laws passed. The bill, S.54, gained approval by the House of Representatives as a bicameral party compromise. This means that the bill had the backing of both parties after negotiations. The resultant vote, at 23 to 6 against, led to a landslide victory. Therefore, the pro-cannabis movement won the battle in Vermont.
All that remains to see the bill made into law is the governor’s signature. The governor of Vermont, Philip Scott, officially awaits the letter to reach his desk formally. Moreover, he still possesses the right to decline signing it. However, such a move would prove counter-intuitive and simply delay the inevitable. As such, experts agree that Scott, through various recent expressions of approval, already supports the decriminalization of cannabis. Hence, his signature comes all but guaranteed.
The Senate also discussed finer details about cannabis legalization and implementation, and expungement in the case of cannabis-related convictions
The adoption of cannabis as a legal item of sale will clearly not be anything but gradual. Great focus needs to go to the taxation, regulation, economic adaptation and safety before the roll-out. Luckily, this aspect of legalization already is pre-planned. The Senate meeting extended to the THC (tetrahydrocannabinol) limits in products, which controls the “high”. In addition, they also went over safety precautions in users, recommended guidelines and established fixed tax levels.
The other aspect of the bill, the social equity program, also underwent expounding. This program aims to compensate those impacted by the disastrous War On Drugs, which led to widespread disproportionate convictions. Families and communities suffered because of these actions taken against those involved with illegal cannabis. Hence, the new bill hopes to ease the suffering of such families.
Other states could learn from Vermont’s example, and hopefully something will change across the United States
Cannabis, unfortunately, remains federally illegal across the United States of America. Try as they might, legalizing cannabis state by state is difficult. At the moment, most conservative states like Texas bear suspicious and intolerant biases towards cannabis. Hence, unless activism takes place in every state, and gradual decriminalization occurs, nothing can happen. Once enough states take to decriminalizing it, a federal level decision may finally occur.
Until the day comes where cannabis no longer is subject to prejudice and intolerance, work must continue to change perceptions. The ongoing COVID-19 pandemic and the growing cannabis industry may just yet spark change. And it doesn’t hurt to have notable celebrities embracing the cause, either.
Patients Prescribed Cannabis In Georgia, USA, Can’t Legally Obtain It
The United States of America often astounds the rest of the world with just how ludicrous its laws seem. Take the example of recreational cannabis, which remains federally illegal since decades. However, a few select states, such as California, Colorado and Georgia, allow small quantities of legally purchased cannabis. Everywhere else, possession of cannabis remains a misdemeanor offense, and other disproportionately severe punitive measures.
In Georgia, in particular, the case of medicinal marijuana recently emerged as troubling. For many patients, medicinal weed simply is a lifesaver and experts agree that it packs unique therapeutic effects. However, in the state of Georgia in particular, it seems like a cruel joke that obtaining said weed becomes near impossible. And this is despite the fact that it’s been legal to possess since 2015.
Despite the usage of medicinal cannabis being legal in the state of Georgia, purchase or sale remains illegal
As far as ridiculous laws go, this one stands out as extremely cruel. With doctors able to prescribe doses of cannabis to ailing patients, the lack of any places to legally obtain it seems absurd. And no, buying cannabis from a shady back alley dealer is not a safe idea. Not just because of the chance of getting caught but because there’s no guarantee the product is what you pay for. Only a legal and regulated avenue available would help.
In 2019, at the behest of several concerned citizens, official government action started. The state governor set up the Georgia Access to Medical Cannabis Commission in 2019 to discuss this terrible issue. And yet, the problem still stands. This is because the panel only convened once, before the COVID-19 pandemic put the matter on hold indefinitely. Thus, millions of patients needing their drug have no one else to ask for help from.
For many patients with a variety of ailments, medicinal marijuana works wonders for their health
Medical science generally holds several consensuses on the health effects of different substances. No respectable doctor will ever claim that arsenic is good for your health. And when it comes to cannabis, the leading consensus after extensive studies and research holds opinions that cannabis may hold several cures. Weed, which consists primarily of CBD (cannabidiol) and THC (tetrahydrocannabinol), exerts effects on the body’s physiology. This leads to improvements in breathing, blood circulation, mood, and pain relief.
Various types of disorders that lead to seizures, such as West Syndrome, in all age groups exist. Fortunately, cannabis is also a known therapeutic agent for reducing the intensity of seizures. In many young individuals, such as a recent UK toddler, it offers marked improvements to health. Furthermore, cannabis offers health benefits to patients with PTSD, anxiety, extreme pain and even in certain cancers. However, there also exists evidence that in the smoked form, it can lead to cardiovascular issues in the long term. Hence, edibles or inhalables suit most users better, and offer better efficacy of the weed.
The United States sorely needs to fix its haphazard and primitive legislation regarding both recreational and medicinal cannabis use
Several conservative states, like Texas, where the most anti-cannabis attitudes prevail, reflect that in their legislation. From introducing ridiculous hemp regulation laws, to launching an entire War On Drugs, they’ve done it all. None of that changes the fact that cannabis stays, and will always do so.
The time comes now that lawmakers, urged by the people, reexamine the science. And then, hopefully change laws for the better. That remains to be seen, however.
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